Without any evaluation of how its AIDS control and prevention
programme has worked in the past decade, India is plunging into the second phase
of the programme bent upon repeating the same mistakes. With many questions
still remaining unanswered about HIV/ AIDS, the disease is being given top
ranking status, eclipsing all other killer diseases, and skewing India’s health
policy.
AIDS is a unique disease because it is linked to a range of opportunistic
infections that arise with its onset. It provides a window to look at what is
going wrong within the health system, in our patterns of social and economic
development. It provides impetus for change.
By pouring money into a narrowly conceived AIDS policy, India is yet again
missing the bus. The past decade’s experience reveals that an AIDS programme
cannot stand in isolation, while general primary health care remains in a state
of shambles.
In the first phase of the programme (1992- 1999) the AIDS programme received
Rs 320 crore; the second phase will see an unprecedented Rs 800 crore assured
through World Bank loans (1).
Three questions
Over the past decade, three
questions have consistently been asked by public health experts in India. While
donor agencies and the Indian government have spoken of ‘projections’ and
‘estimates’ about the AIDS epidemic sweeping India, where is the epidemiological
data supporting those claims? Secondly, AIDS is connected with a range of
diseases like TB, diarrhoea, malnutrition or malaria (the presence of these
factors depress the immune system leading to the faster onset of AIDS). Why then
are we seeing the eclipse of all other disease programmes and a major portion of
the ‘AIDS funds’ poured into a ‘targeted’ intervention programme, geared at
condom promotion and sex education? Thirdly, the hysteria and scare tactics
being used to create awareness about AIDS are wreaking social havoc. In the past
months, reports have poured in from across the country about incidents of
lynching and ostracism by entire communities against AIDS patients.
To date, the National AIDS Control Organisation records 5,204 AIDS cases in
India, primarily reported from four states. Meanwhile, those testing HIV
positive number 75,000. Until 1997, these samples were drawn from 55 ‘sentinel
surveillance sites’ - blood banks, sexually transmitted disease clinics and
ante- natal clinics -that are not uniformly spread across the country. Bihar,
for instance, has none, and its one testing centre in Patna reports 29 HIV cases
and three of AIDS. Meanwhile Maharashtra reports 46,000 testing HIV positive and
2,518 AIDS cases. Such uneven trends, drawn from selectively chosen groups in a
few urban areas, are being extrapolated to the general population across the
country (2).
Despite the absence of epidemiological data, India unquestionably follows the
diktat of donor agencies in pursuit of a vertical AIDS programme. Countries like
Thailand have integrated AIDS into a strong primary health system. They are now
seeing results in AIDS prevention, and simultaneously in malaria control.
India’s primary health services remain in shambles. A vertical AIDS programme
cannot work when there is no primary health base it can stand upon. Indian
health experience offers one key insight: when the community receives a
comprehensive package of curative service it needs, only then does it become
receptive to the prevention message.
Comprehensive care
Meanwhile, a fundamental
debate rages on internationally on whether HIV is the sole cause of AIDS. Is
AIDS related to abuse of lifestyle rather than a virus? Do factors such as
antibiotic and recreational drug abuse, anal sex, nutrition and stress disorders
play any role in immune system suppression? Does AIDS research need to look at
drugs that modulate or boost the immune system response? When so many questions
remain unanswered about HIV/ AIDS, shouldn’t our interventions be as broad-
based as possible?
There are also questions about whether public policy should encourage HIV
testing when there are doubts about the accuracy of the kit and whether the
virus itself has been isolated. If HIV exists, but is ‘constantly mutating’, can
the HIV test show a false negative result? When the HIV test is conducted on
persons suffering from malaria,TB, malnutrition and other common infections, can
there be a cross-reaction, leading to false positive results?
After (more than) a decade of living with AIDS, maybe this disease needs to
be teach us that there is more to it than condoms, and sex education. AIDS is
about creating responses to social and economic needs, comprehensive health care
and education.
The Times of’ India, September 2, 1998.
References :
1. Interview with World Bank officials
at a workshop on AIDS in Mumbai, reported in: ‘India will launch second phase of
AIDS programme soon’, The Times of India.
2. Interview with Padam Singh,
director, Institute for Research in Medical Statistics, Indian Council of
Medical Research, Delhi, reported in The Times of India.
3. Interviews with
Salvation Army Captain Suresh Pawar, Mumbai, Dr Shilpa Merchant, Population
Services International, Mumbai, Ashok Row Kavi, Humsafar Trust, Mumbai and
Shalini Bharat, Tata Institute of Social Sciences, Mumbai.
4. Eleopolis
Eleni, Lanka Stefan: The isolation of HIV: has it really been achieved? The case
against. Continuum, September/October 1996.