CASE STUDY RESPONSE
Rapport building and blurring identity
Jayashree Ramakrishna
Renu Addlakha (RA) sensitively portrays ethical issues and dilemmas
inherent in anthropological research, particularly in research projects carried
out in institutionalised settings among marginalised and stigmatised populations
(1). As a conscientious researcher, well attuned to the nuances and shades of
ethical questions and concerns, she was consciously and consistently reflective.
Thus, she managed to identify and address competing and conflicting ethical
concerns.
While working in a psychiatric setting, an anthropologist has at
least three sets of 'informants' or 'respondents': health care providers,
patients and their families. Each of them may have differing ideas and
definitions of mental health and also different expectations regarding the
desired outcome of institutional care.
Blurring identities
Building rapport is crucial to
anthropological research, and the time invested in building relationships yields
rich, complex data. RA notes that "... personal rapport proved invaluable,
since it gave me unlimited access to the time, resources and personnel of the
hospital". The process of building rapport often leads to a blurring of
the researcher's identity - for hospital personnel as well as for patients and
family members. Though the anthropologist may initially be viewed as a
researcher, in time health personnel may regard her /him as a colleague, friend
and confidant. Similarly, patients and their family members will view the
researcher as an understanding and sympathetic 'health personnel', who has more
access to the health resources than they do.
Anthropological methods such as
participant observation and informal interviews are often not seen as research
tools in the same way as a questionnaire or survey instrument is. Moreover,
anthropological research is long term, and familiarity leads to development of
intimacy and shedding of inhibitions. This opens up hidden areas to the
researcher who is then is viewed not as an 'outsider' but as a
'quasi-insider' privy to much more sensitive information than an outsider would
ever have. Even those 'respondents' who want to control the
anthropologist's access to information and the observations made may find it
hard to do so. Patients and family members drop their guard and discuss
sensitive family matters and reveal their feelings and
emotions.
Informed consent
In such situations, formal processes
of obtaining informed consent, developed in the context of structured research
in medical settings where the identities and roles of the researcher are more
clearly defined, may not be suitable. The emphasis on standardised written
procedures for obtaining informed consent and the requirement of a formal
signature have proved to be deterrents to 'full' participation by certain types
of respondents. This may not be a barrier in medical institutional settings
where signatures are obtained as a matter of course. Unfortunately the spirit
behind informed consent is often forgotten, and it becomes a routine,
standardised procedure. As RA points out, in anthropological research of a long
duration, it is imperative to renew, renegotiate and reaffirm informed consent.
This would be especially important if the patients' health status is in flux, if
they have mood swings, and so on. Even when there is conscientious and
systematic explanation of the nature of research, people with medical problems
and their family members will find it difficult to comprehend that no direct
benefit may accrue to them (2).
RA made a proactive decision to privilege the
patient over family members, and did not include patients who were reluctant to
participate even if their family members were keen. In some ways this was an
easier situation to tackle, though the patient could have suffered adverse
consequences. It would have been worse if the opposite had happened: if the
patient wanted to participate while the family members refused, fearing stigma.
Recruiting participants when their families disapprove could adversely affect
the relationship between patients and care givers.
RA raises the issue of
shared confidentiality between the researcher and patients and family members on
the one hand, and between researcher and health personnel on the other. It is a
challenge to maintain this shared confidentiality over a period of time in an
institution with well-defined hierarchies. It would have been useful to examine
this further with illustrations of situations where confidentiality was
threatened and efforts made to maintain confidentiality, and where
confidentiality had to be compromised in the interests of the patients or the
institution.
Reference
1. Addlakha Renu. Ethical quandaries in
anthropological fieldwork in psychiatric settings. IJME 2005; 2:
55-56.
2. Molyneux C S, Peshu N and Marsh K. Understanding of informed
consent in a low-income setting: three case studies from the Kenyan coast.
Social Science & Medicine 2004; 59: 2547-2559.
JAYASHREE RAMAKRISHNA, Additional Professor and Head, Department of Health
Education, National Institute of Mental Health and Neuro Sciences, Bangalore 560
029 INDIA. e-mail:
j_ramakrishna@vsnl.com